News/Events
2020 Walk and Roll for PWS – Our 10th Anniversary
July 3rd, 2019Mark your calendars!! Saturday, May 30th 2020 will be our tenth annual Walk and Roll for PWS. Even more exciting than that anniversary, is that the walk will be held in a very special location, The Beardsley Zoo!! We hope to see you all there!!
Read More2019 Walk and Roll for PWS
April 6th, 2019Our ninth annual Walk and Roll for PWS is set to get underway! Please join us on Saturday, June 15th!! Register or donate here: 2019 Walk and Roll for PWS
Read MorePWS Educational Conference – June 1st in Glastonbury, CT
April 6th, 2019Have you heard the exciting news!?! We hope we will see you all there!! SAVE the DATE PWS Conference Prader-Willi Syndrome: A Bright Future Hosted by Latham Centers and Mac Pact Who: PWS Families, Specialists, and Providers Where: Hilton Garden Inn Hartford South/Glastonbury CT When: Saturday, June 1, 2019 Time: 9am-4pm, followed by a cocktail […]
Read More2018 Walk and Roll for PWS
March 8th, 2018Join us on Saturday, June 16th at Coginchaug Regional High School for our eighth annual Walk and Roll for PWS!! We hope to see you all there!
Read More2017 Walk and Roll for PWS
December 6th, 2017This past year saw a new venue for our Walk and Roll at Coginchaug High School in Durham, CT. As always, we had a wonderful turnout and had a fantastic morning surrounded by our amazingly supportive families and friends. The morning was filled with fun! Our annual Touch-a Truck, Kurt from Balloon Benders, face painting […]
Read MoreFirst Conference a Huge Success
December 6th, 2017This past April, the Mac Pact and PWS Families United hosted an amazing conference featuring some of the leading experts in the field of Prader-Willi Syndrome. The incomparable Dr. Jennifer Miller, Elizabeth Roof of the Vanderbilt Kennedy Center and Hannah Stahmer, a nutritionist specializing in care for people PWS, of the University of Florida came […]
Read MoreJoin us for our first Parent/Caregiver Support Meeting
January 20th, 2017Join us on Thursday, February 2nd from 5:30 to 7:00 at the Clifford Beers Clinic for our first Parent/Caregiver Support Meeting. Come meet old friends, make new ones, and take some time to feel supported. 93 Edwards Street, New Haven. Light refreshments will be served.
Read MoreJoin us at Panera!
March 25th, 2016On Wednesday April 6th, Panera Bread at 2100 Dixwell Avenue in Hamden CT will be holding a Fundraising Night for PWS Families United! Come out between 4:00 pm and 8:00 pm and bring a copy of our flyer with you or even on your phone. Enjoy a delicious meal and help us raise funding for […]
Read MoreWhy We Love Dr. Miller!!
November 10th, 2015On October 29th, 2015, the incomparable Dr. Miller presented a 30 minute webinar on supplements to help support our loved ones with PWS. She also touched upon certain medications that she prescribes to help with daytime sleepiness which can help mediate certain related behaviors. Contact us for more information related to the webinar.
Read MorePromising Results from Clinical Trial at UFL
November 10th, 2015TREND & PWS USA Oxytocin Initiative TREND and PWSA (USA) are excited to support Drs. Jennifer Miller and Dan Driscoll in their endeavor to gain FDA approval to make oxytocin a standard of care for Prader-Willi syndrome (PWS). Rationale A Phase 1 study of intranasal oxytocin for the treatment of PWS, funded by PWSA (USA), […]
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