Walk and Roll


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2020 – The Walk and Roll for PWS goes to the ZOO!!

We can’t believe this year marks our tenth annual Walk and Roll for PWS.  In celebration of this milestone we will be holding our walk at the Beardsley Zoo in Bridgeport, CT on Saturday, May 30th.  Mark you calendars!!  We hope to see you there!!

2019 – Great day with a surprise!!

Our ninth annual Walk and Roll for PWS was held on June 15th again at Coginchaug Regional High School, in Durham, CT.  It was a beautiful day and we had a special announcement about our 10th Walk and Roll in 2020!

2018 – Back in Durham, but this year in June

Our eighth annual Walk and Roll for PWS was held on June 16th in Durham, CT at Coginchaug Regional High School.  We again surpassed our goal of raising $30,000!  It was another amazing day for our awesome event!!

2017 – New Location, Same Great Event

Our seventh Walk and Roll was held in Durham, CT at Coginchaug Regional High School and it was another great event.  This year we surpassed our goal of $30,000!  No matter where we are, we know our families will make it a success!

2016 is Our Year to Make a Difference

We have an amazing opportunity to fund an exceptionally promising clinical trial this year. Dr. Miller needs our help to raise 1 million dollars to begin her Phase Two trial of oxytocin. Oxytocin has absolutely changed the lives of kiddos living with PWS, for the short time they we enrolled in her Phase One trial. Help us make to promise of oxytocin a reality for our children and all people living with PWS. Watch the Oxytocin Initiative video to learn more!!

About the Walk and Roll

The Walk and Roll for PWS was started in July 2010 by Matt and Amy Tenbrunsel after their son Aedan was diagnosed with Prader-Willi syndrome. It was created to bring awareness to the community and to bring local families living with PWS together. We’d like to think it has been a huge success.

Event History

Walk and Roll, July 16th, 2011
Our first walk. Attended mainly by extended family and friends the first walk raised over $15,000 for PWSA (USA)’s On the Move Campaign.
Walk and Roll, Saturday, May 19th 2012
Many new families joined us this year, including Deb and Jessie and their lovely new little one Maddie. Since that Friday before the walk, Deb has been an integral part of all things Walk and Roll and PWS Families United.
Walk and Roll, Sunday May 19th 2013
With lots of returning families and faces, we were joined by a new family whose little one was so new in fact, that she couldn’t make it to our event, because she was still hanging out with the doctors and nurses at Yale.
Walk and Roll, May 17th 2014
For our fourth Walk and Roll we focused on fundraising for research and held a One Small Step walk for the Foundation for Prader-Willi Research. We had an amazing turnout and raised over $30,000.
Walk and Roll, May 16th 2015
The rain stopped just in time for us to have our largest walk to date. We also had our most amazing turnout of families. This year was also special because it marked our first year fundraising for Prader Willi Syndrome Families United. We set a new fundraising record raising nearly $40,000. And we were finally able to decide as a community where we wanted our hard earned fundraising dollars to go. Donations were made to FPWR, the MAC PACT, PWSA (USA) and directly to a very promising treatment being researched by an amazing team of doctors dedicated to improving the lives of our children, Dr. Dan Driscoll and Dr. Jennifer Miller both of the University of Florida. For more information on their clinical trial please visit our News & Events page.
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